A mum suffering from the 'worst pain known to medicine' could be internally decapitated at any time.

Less than a third of victims survive such an injury, which is caused when the spine shifts and separates from the base of the skull.

For Amanda McTaggart, it mean she needs to wear a neck brace and is confined to a wheelchair.

She is now considering surgery oversees, which would cost £10,000.

There are only two doctors in the world who can carry out the complex procedure – one in Spain and one in America.

The mum-of-one's condition is caused by Ehlers-Danlos syndrome (EDS), a rare genetic connective tissue disorder, but she also suffers from trigemenal neuralgia, which causes sudden severe facial pain described by the NHS as "like having an electric shock in the jaw teeth or gums", according to The Sun.

The shocks can occur hundreds of times a day leading to it being described as the worst pain known to medicine.

Attacks can last from a few seconds to two minutes and come on suddenly.

The condition's cause is unknown and about one in 1,000 people have it, with some going for months without attacks before it suddenly returns.

In order to quell the excruciating pain Amanda, from Mullaghbawn, Northern Ireland, needs to take 36 tablets and four injections a day. She has been told she will soon run out of medication options.

While the NHS does fund some treatment for EDS it is on a case by case basis and many of the other check ups Amanda has to attend are not paid for.

She is left using a wheelchair and neck brace to limit the chances of internal decapitation, medically known as atlantoaxial instability, which could occur with any wrong movement.

Those with the syndrome suffer from fragile and stretchy tissue which can make them hypermobile or double jointed but also results in long-term pain, chronic fatigue, dizziness and palpitations.

She said: "As a family this has been completely horrendous to cope with.

"My little boy – Ethan, four – has been pulled from pillar to post while I am either in hospital or getting treatment.

"I miss out on his football, his swimming lessons and even so much as seeing him play outside."

She has now started GoFundMe appeal to try and help cover medical fees.

Her conditions mean she has a long list of allergies and could develop a reaction to anything at any time, including sunlight or water.

When Amanda was last in hospital, staff told her they had not seen someone in such pain for a very long time.

While she has had some help from the NHS, receiving wheelchairs and walking aids, the cost or reputedly travelling to London for specialist appointments is mounting up and the possibility of a £10,000 operation is daunting.

In the past week, more than 100 donations have flooded in and she has so far raised £3,615, just over £1,000 shy of her £5,000 target.

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